By: Simmons, et al. (Senate Sponsor - Miles) H.B. No. 107          (In the Senate - Received from the House April 28, 2025;   April 29, 2025, read first time and referred to Committee on Health &   Human Services; May 19, 2025, reported favorably by the following   vote:  Yeas 7, Nays 0; May 19, 2025, sent to printer.)Click here to see the committee vote     A BILL TO BE ENTITLED   AN ACT     relating to the establishment of the sickle cell disease registry.          BE IT ENACTED BY THE LEGISLATURE OF THE STATE OF TEXAS:          SECTION 1.  Subtitle B, Title 2, Health and Safety Code, is   amended by adding Chapter 52B to read as follows:   CHAPTER 52B.  SICKLE CELL DISEASE REGISTRY          Sec. 52B.001.  DEFINITION. In this chapter, "health care   facility" means:                (1)  a hospital licensed under Chapter 241; or                (2)  any other facility that provides diagnostic or   treatment services to patients with sickle cell disease.          Sec. 52B.002.  REGISTRY; CONTENTS.  (a)  The department   shall establish and maintain a sickle cell disease registry in   accordance with this chapter for use as a single repository of   accurate, complete records of sickle cell disease cases to aid in   the cure and treatment of sickle cell disease in this state.          (b)  The sickle cell disease registry must include:                (1)  a record of sickle cell disease cases that occur in   this state; and                (2)  any other information concerning sickle cell   disease cases the executive commissioner considers necessary and   appropriate to assist with the cure or treatment of sickle cell   disease.          Sec. 52B.003.  DATA FROM HEALTH CARE FACILITIES. A health   care facility shall provide to the department, in the form and   manner the department prescribes, data the department considers   necessary and appropriate concerning sickle cell disease cases.          Sec. 52B.004.  DEPARTMENT POWERS; RULES.  (a)  To implement   this chapter, the department may:                (1)  execute necessary contracts;                (2)  receive data from health care facilities   concerning sickle cell disease cases to record and analyze the data   directly related to the disease; and                (3)  compile and publish statistical and other studies   derived from data obtained under this chapter to provide, in an   accessible form, information useful to physicians, other medical   personnel, and the public.          (b)  The executive commissioner shall adopt rules to   implement this chapter.          (c)  The executive commissioner by rule shall develop   guidelines to:                (1)  obtain data from health care facilities regarding   sickle cell disease cases;                (2)  protect the confidentiality of individuals   diagnosed with sickle cell disease in accordance with Section   159.002, Occupations Code; and                (3)  ensure the registry is developed in a manner   consistent with:                      (A)  the Health Insurance Portability and   Accountability Act of 1996 (Pub. L. No. 104-191) and regulations   adopted under that Act; and                      (B)  other applicable laws and regulations   governing disclosure of health information.          Sec. 52B.005.  REPORTS. (a) The department shall submit an   annual report to the legislature on the information obtained under   this chapter.          (b)  The department, in cooperation with other sickle cell   disease reporting organizations and research institutions, may   publish reports the department determines are necessary to carry   out the purposes of this chapter.          SECTION 2.  As soon as practicable after the effective date   of this Act, the executive commissioner of the Health and Human   Services Commission shall adopt rules necessary to implement   Chapter 52B, Health and Safety Code, as added by this Act.          SECTION 3.  This Act takes effect September 1, 2025.     * * * * *